Posted On : 22nd July 2022
For many parents, finally getting a diagnosis for your child’s condition should be a breath of fresh air. With a diagnosis, you can figure out what to do. You can find treatment. You can find support
But, for Winifred Winston, just getting a diagnosis for her daughter was an expensive and confusing run around. She dealt with specialists who couldn’t “assess’ her daughter’s condition even though they confirmed she had every symptom of a learning disorder. Winifred had to pay thousands just to get an “official” diagnosis and even more money getting her daughter into a school that could support her child.
Yet, in spite of these challenges, Winifred didn’t become bitter. She didn’t lose motivated and stop being the loudest and most informed advocate for her daughter.
But, Winifred also took it one step further than advocating for her child.
She turned her financial, emotional, and paperwork struggles into advocacy. She reached out to other parents and began to form networks. She reached out to professional support groups and began to work with them.
She became more.
Oftentimes, when we find ourselves in a confusing and stressful situation, it can feel so easy to get bitter or angry. We blame “them”.We blame ourselves. She became a school administrator in a school for children with learning disabilities.
She didn’t stay in the “blame game” because blame never solves the problem. It only pushes the solution further away from you.
By
taking ownership of the situation, instead of blaming others, Winifred brough
solutions and connections that brought even more solutions.
That
is the key. Being comfortable providing solutions versus blame. By taking
ownership of solution, she was able to create a solution that worked for her
family along with other families.
Tips
from Winifred’s story that can on advocacy:
1. Focus on solutions While you should acknowledge
blame, you should not wallow in. As shared above, wallowing in the “blame game”
gives you more blame to deal. A better approach is to find what you need and a
pathway to get there.If you don’t know a possible solution, make that your
first mission.
2. Identify supporters, mentors, and
connectors
While you’re advocating, you will run across people who could play different
roles in journey. Some people will provide emotional, financial, or social
support. Others will teach you important lessons, Still, others may connect you
to others. Some people will play more than one role. Honor these roles in your
journey. These people will help support you, as a person, and your mission.
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